Should the family have a role in deceased organ donation decision-making? A systematic review of public knowledge and attitudes towards organ procurement policies in Europe
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Organ donationHealth policyPublic viewsFamily decision-makingFamily overruleEurope
Alberto Molina-Pérez... [et al.]. Should the family have a role in deceased organ donation decision-making? A systematic review of public knowledge and attitudes towards organ procurement policies in Europe, Transplantation Reviews, Volume 36, Issue 1, 2022, 100673, ISSN 0955-470X, [https://doi.org/10.1016/j.trre.2021.100673]
SponsorshipSpanish government, [grant number FJCI-2017-34286] and [grant number MINECO FFI2017–88913-P]
Goal: To assess public knowledge and attitudes towards the family’s role in deceased organ donation in Europe. Methods: A systematic search was conducted in CINHAL, MEDLINE, PAIS Index, Scopus, PsycINFO, and Web of Science on December 15th, 2017. Eligibility criteria were socio-empirical studies conducted in Europe from 2008 to 2017 addressing either knowledge or attitudes by the public towards the consent system, including the involvement of the family in the decision-making process, for post-mortem organ retrieval. Screening and data collection were performed by two or more independent reviewers for each record. Results: Of the 1482 results, 467 studies were assessed in full-text form, and 33 were included in this synthesis. When the deceased has not expressed any preference, a majority of the public support the family’s role as a surrogate decision-maker. When the deceased expressly consented, the respondents’ answers depend on whether they see themselves as potential donors or as a deceased’s next-of-kin. Answers also depend on the relationship between the deceased and the decision-maker(s) within the family, and on their ethnic or cultural background. Conclusions: Public views on the authority of the family in organ donation decision-making requiere further research. A common conceptual framework and validated well-designed questionnaires are needed for future studies. The findings should be considered in the development of Government policy and guidance regarding the role of families in deceased organ donation.