@misc{10481/74819,
year = {2021},
month = {11},
url = {http://hdl.handle.net/10481/74819},
abstract = {Goal: To assess public knowledge and attitudes towards the family’s role in deceased organ donation in Europe.
Methods: A systematic search was conducted in CINHAL, MEDLINE, PAIS Index, Scopus, PsycINFO, and Web of
Science on December 15th, 2017. Eligibility criteria were socio-empirical studies conducted in Europe from 2008
to 2017 addressing either knowledge or attitudes by the public towards the consent system, including the
involvement of the family in the decision-making process, for post-mortem organ retrieval. Screening and data
collection were performed by two or more independent reviewers for each record.
Results: Of the 1482 results, 467 studies were assessed in full-text form, and 33 were included in this synthesis.
When the deceased has not expressed any preference, a majority of the public support the family’s role as a
surrogate decision-maker. When the deceased expressly consented, the respondents’ answers depend on whether
they see themselves as potential donors or as a deceased’s next-of-kin. Answers also depend on the relationship
between the deceased and the decision-maker(s) within the family, and on their ethnic or cultural background.
Conclusions: Public views on the authority of the family in organ donation decision-making requiere further
research. A common conceptual framework and validated well-designed questionnaires are needed for future
studies. The findings should be considered in the development of Government policy and guidance regarding the
role of families in deceased organ donation.},
organization = {Spanish government, [grant number
FJCI-2017-34286] and [grant number MINECO FFI2017–88913-P]},
publisher = {Elsevier},
keywords = {Organ donation},
keywords = {Health policy},
keywords = {Public views},
keywords = {Family decision-making},
keywords = {Family overrule},
keywords = {Europe},
title = {Should the family have a role in deceased organ donation decision-making? A systematic review of public knowledge and attitudes towards organ procurement policies in Europe},
doi = {10.1016/j.trre.2021.100673},
author = {Molina Pérez, Alberto and Delgado Rodríguez, Janet},
}