<rdf:RDF xmlns:rdf="http://www.openarchives.org/OAI/2.0/rdf/" xmlns:ow="http://www.ontoweb.org/ontology/1#" xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:ds="http://dspace.org/ds/elements/1.1/" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xmlns:doc="http://www.lyncode.com/xoai" xsi:schemaLocation="http://www.openarchives.org/OAI/2.0/rdf/ http://www.openarchives.org/OAI/2.0/rdf.xsd">
   <ow:Publication rdf:about="oai:digibug.ugr.es:10481/59625">
      <dc:title>Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients</dc:title>
      <dc:creator>Perpiña Galvañ, Juana</dc:creator>
      <dc:creator>García Caro, María Paz</dc:creator>
      <dc:subject>Palliative care</dc:subject>
      <dc:subject>Caregivers</dc:subject>
      <dc:subject>Burden</dc:subject>
      <dc:subject>Anxiety</dc:subject>
      <dc:subject>Depressions</dc:subject>
      <dc:subject>Quality of life</dc:subject>
      <dc:description>The complexity of palliative care means that the emotional distress and burden that&#xd;
primary family caregivers su er under can be particularly high. The objective of this study was&#xd;
to determine the level of burden endured by these primary family caregivers and to identify the&#xd;
variables that predict it in the caregiving relatives of people who require home-based palliative care.&#xd;
A descriptive-correlational cross-sectional study was conducted. Socio-demographic and clinical data&#xd;
were collected from caregivers through a self-administered questionnaire that included questions&#xd;
from the 12-Item Short Form Health Survey (SF-12), Zarit Caregiver Burden Interview (ZBI), Hospital&#xd;
Anxiety and Depression Scale (HADS), Brief Resilient Coping Scale (BRCS), Post Traumatic Growth&#xd;
Inventory (PTGI), and Fatigue Assessment Scale (FAS). A total of 77 caregivers participated; 66.2%&#xd;
were women, and the mean age was 61.5 years. Most (62.3%) were providing care to cancer patients.&#xd;
From among these data, the presence of anxiety as a clinical problem (48.1%), a high average fatigue&#xd;
score (FAS) of 23.0 (SD = 8.5), and the prevalence of intense overload (41.6%) stood out. We found&#xd;
statistically significant correlations between the variables of burden, fatigue, post-traumatic growth,&#xd;
anxiety, and depression, with the latter two being the main predictive variables of burden. In addition,&#xd;
caregiver burden was associated with a worsening of health. Identifying the factors that influence the&#xd;
appearance of overburden will allow the specific needs of careers to be assessed in order to o er them&#xd;
emotional support within the healthcare environment.</dc:description>
      <dc:date>2020-02-13T08:37:13Z</dc:date>
      <dc:date>2020-02-13T08:37:13Z</dc:date>
      <dc:date>2019-11-29</dc:date>
      <dc:type>journal article</dc:type>
      <dc:identifier>Perpiñá-Galvañ, J., Orts-Beneito, N., Fernández-Alcántara, M., García-Sanjuán, S., García-Caro, M. P., &amp; Cabañero-Martínez, M. J. (2019). Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients. International Journal of Environmental Research and Public Health, 16(23), 4806.</dc:identifier>
      <dc:identifier>http://hdl.handle.net/10481/59625</dc:identifier>
      <dc:identifier>10.3390/ijerph16234806</dc:identifier>
      <dc:language>eng</dc:language>
      <dc:rights>http://creativecommons.org/licenses/by/3.0/es/</dc:rights>
      <dc:rights>open access</dc:rights>
      <dc:rights>Atribución 3.0 España</dc:rights>
      <dc:publisher>MDPI</dc:publisher>
   </ow:Publication>
</rdf:RDF>