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dc.contributor.authorCortés Martín, Jonathan 
dc.contributor.authorDíaz Rodríguez, Consuelo Lourdes 
dc.contributor.authorPiqueras Sola, Beatriz
dc.contributor.authorSánchez García, Juan Carlos 
dc.contributor.authorRodríguez Blanque, Raquel 
dc.date.accessioned2022-07-13T10:54:41Z
dc.date.available2022-07-13T10:54:41Z
dc.date.issued2022-06-18
dc.identifier.citationCortés-Martín, J... [et al.]. Nursing Care Plan for Patients with Hajdu–Cheney Syndrome. Int. J. Environ. Res. Public Health 2022, 19, 7489. [https://doi.org/10.3390/ijerph19127489]es_ES
dc.identifier.urihttp://hdl.handle.net/10481/75988
dc.description.abstractHajdu–Cheney syndrome is a rare genetic disease. Its main features include phenotypic variability, age-dependent progression and the presence of acroosteolysis of the distal phalanges and generalized osteoporosis, which have significant disabling potential. Currently, there is no effective curative treatment, so nursing care is essential to ensure the maintenance of the quality of life of these patients. The main objective of this study was to establish a specific standardized nursing care plan using the NANDA–NIC–NOC taxonomy. The application of a care plan as such would improve the quality of life of patients affected by this rare disease, will contribute to increasing healthcare professionals’ knowledge on this matter and will support future studies on this disease.es_ES
dc.language.isoenges_ES
dc.publisherMDPIes_ES
dc.rightsAtribución 4.0 Internacional*
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/*
dc.subjectRare diseasees_ES
dc.subjectHajdu-Cheney syndromees_ES
dc.subjectNursing care planes_ES
dc.subjectAcroosteolysises_ES
dc.subjectNOTCH2es_ES
dc.subjectClinical practicees_ES
dc.subjectHealthcarees_ES
dc.titleNursing Care Plan for Patients with Hajdu–Cheney Syndromees_ES
dc.typeinfo:eu-repo/semantics/articlees_ES
dc.rights.accessRightsinfo:eu-repo/semantics/openAccesses_ES
dc.identifier.doi10.3390/ijerph19127489
dc.type.hasVersioninfo:eu-repo/semantics/publishedVersiones_ES


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Atribución 4.0 Internacional
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