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dc.contributor.authorMota Romero, Emilio
dc.contributor.authorEsteban Burgos, Ana Alejandra 
dc.contributor.authorPuente Fernández, Daniel 
dc.contributor.authorGarcía Caro, María Paz 
dc.contributor.authorHueso Montoro, César 
dc.contributor.authorMontoya Juárez, Rafael
dc.identifier.citationMota-Romero, E... [et al.]. NUrsing Homes End of Life care Program (NUHELP): developing a complex intervention. BMC Palliat Care 20, 98 (2021). []es_ES
dc.descriptionThis study has been totally funded by Consejeria de Salud, Junta de Andalucia (Fundacion Publica Andaluza Progreso y Salud, Proyecto AP-0105-2016). Funding has been received for data collection, analysis and interpretation of data and manuscript writing.es_ES
dc.description.abstractBackground: Nursing homes are likely to become increasingly important as end-of-life care facilities. Previous studies indicate that individuals residing in these facilities have a high prevalence of end-of-life symptoms and a significant need for palliative care. The aim of this study was to develop an end-of-life care program for nursing homes in Spain based on previous models yet adapted to the specific context and the needs of staff in nursing homes in the country. Methods: A descriptive study of a complex intervention procedure was developed. The study consisted of three phases. The first phase was a prospective study assessing self-efficacy in palliative care (using the SEPC scale) and attitudes towards end-of-life care (using the FATCOD-B scale) among nursing home staff before and after the completion of a basic palliative care training program. In the second phase, objectives were selected using the Delphi consensus technique, where nursing home and primary care professionals assessed the relevance, feasibility, and level of attainment of 42 quality standards. In phase 3, interventions were selected for these objectives through two focus group sessions involving nursing home, primary care, and palliative care professionals. Results: As a result of the training, an improvement in self-efficacy and attitudes towards end-of-life care was observed. In phase 2, 14 standards were selected and grouped into 5 objectives: to conduct a comprehensive assessment and develop a personalized care plan adapted to the palliative needs detected; to provide information in a clear and accessible way; to request and record advance care directives; to provide early care with respect to loss and grief; to refer patients to a specialized palliative care unit if appropriate, depending on the complexity of the palliative care required. Based on these objectives, the participants in the focus group sessions designed the 22 interventions that make up the program. Conclusions: The objectives and interventions of the NUHELP program constitute an end-of-life care program which can be implemented in nursing homes to improve the quality of end-of-life care in these facilities by modifying their clinical practice, organization, and relationship with the health system as well as serving as an example of an effective health intervention program.es_ES
dc.description.sponsorshipConsejeria de Salud, Junta de Andalucia (Fundacion Publica Andaluza Progreso y Salud) AP-0105-2016es_ES
dc.rightsAtribución 3.0 España*
dc.subjectNursing home carees_ES
dc.subjectEnd of Lifees_ES
dc.subjectHolistic carees_ES
dc.subjectNurse-patient interactiones_ES
dc.subjectNurse-patient relationshipses_ES
dc.subjectOlder people es_ES
dc.subjectPalliative carees_ES
dc.titleNUrsing Homes End of Life care Program (NUHELP): developing a complex interventiones_ES

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Atribución 3.0 España
Except where otherwise noted, this item's license is described as Atribución 3.0 España