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Experiences of family caregivers of patients with terminal disease and the quality of end-of-life care received: a mixed methods study
dc.contributor.author | Martí García, Celia | |
dc.contributor.author | Fernández Alcántara, Manuel | |
dc.contributor.author | Suárez López, Patricia | |
dc.contributor.author | Romero Ruiz, Carolina | |
dc.contributor.author | Muñoz Martín, Rocío | |
dc.contributor.author | García Caro, María Paz | |
dc.date.accessioned | 2021-01-27T13:25:41Z | |
dc.date.available | 2021-01-27T13:25:41Z | |
dc.date.issued | 2020-12-14 | |
dc.identifier.citation | Martí-García C, Fernández-Alcántara M, Suárez López P, Romero Ruiz C, Muñoz Martín Rí, Garcia-Caro MP. 2020. Experiences of family caregivers of patients with terminal disease and the quality of end-of-life care received: a mixed methods study. PeerJ 8:e10516 [http://doi.org/10.7717/peerj.10516] | es_ES |
dc.identifier.uri | http://hdl.handle.net/10481/66080 | |
dc.description | This study is part of a research project financed in a public and competitive call by the Health Ministry of the Junta de Andalucía (Variability of clinical practice and conditioning factors in the implementation of end-of-life care processes, Ref no PI-0670 -2010). The funders had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript. | es_ES |
dc.description | Supplemental information for this article can be found online at http://dx.doi.org/10.7717/ peerj.10516#supplemental-information | es_ES |
dc.description.abstract | The aim of this study was to analyze the perceptions and experiences of relatives of patients dying from a terminal disease with regard to the care they received during the dying process, considering the oncological or non-oncological nature of the terminal disease, and the place where care was provided (at home, emergency department, hospital room, or palliative care unit). For this purpose, we conducted a mixed-methods observational study in which two studies were triangulated, one qualitative using semi-structured interviews (n = 30) and the other quantitative, using questionnaires (n = 129). The results showed that the perception of relatives on the quality of care was highly positive in the quantitative evaluation but more critical and negative in the qualitative interview. Experience of the support received and palliative measures was more positive for patients attended in hospital in the case of oncological patients but more positive for those attended at home in the case of non-oncological patients. | es_ES |
dc.description.sponsorship | Health Ministry of the Junta de Andalucia PI-0670 -2010 | es_ES |
dc.language.iso | eng | es_ES |
dc.publisher | PeerJ | es_ES |
dc.rights | Atribución 3.0 España | * |
dc.rights.uri | http://creativecommons.org/licenses/by/3.0/es/ | * |
dc.subject | Palliative care | es_ES |
dc.subject | Qualitative | es_ES |
dc.subject | Mixed methods | es_ES |
dc.subject | Bereavement | es_ES |
dc.subject | Relatives | es_ES |
dc.subject | End-of-life care | es_ES |
dc.subject | Caregivers | es_ES |
dc.title | Experiences of family caregivers of patients with terminal disease and the quality of end-of-life care received: a mixed methods study | es_ES |
dc.type | journal article | es_ES |
dc.rights.accessRights | open access | es_ES |
dc.identifier.doi | 10.7717/peerj.10516 | |
dc.type.hasVersion | VoR | es_ES |