@misc{10481/92968,
year = {2024},
month = {7},
url = {https://hdl.handle.net/10481/92968},
abstract = {Considering public moral attitudes is a hallmark of the anticipatory governance of emerging biotechnologies, such as heritable human genome editing. However, such anticipatory governance often overlooks that future morality is open to change and that future generations may perform different moral assessments on the very biotechnologies we are trying to govern in the present. In this article, we identify an ’anticipatory gap’ that has not been sufficiently addressed in the discussion on the public governance of heritable genome editing, namely, uncertainty about the moral visions of future generations about the emerging applications that we are currently attempting to govern now. This paper motivates the relevance of this anticipatory gap, identifying the challenges it generates and offering various recommendations so that moral uncertainty does not lead to governance paralysis with regard to human germline genome editing.},
organization = {La Caixa Foundation (LCF/BQ/DR20/11790005)},
organization = {Conselho Nacional de Desenvolvimento Científico e Tecnológico (421523/2022-­0)},
organization = {Sabadell Foundation},
organization = {Dutch Ministry of Education, Culture and Science},
organization = {Dutch Research Council under Grant number 024.004.031},
organization = {H2020 European Research Council (851043)},
organization = {Croatian Science Foundation (IP-­2022-­10-­5341)},
organization = {Spanish Ministry of Universities (grant FPU19/06027)},
organization = {US-­Spain Fulbright grant},
publisher = {BMJ},
keywords = {Anticipatory governance},
keywords = {Heritable human genome editing},
keywords = {Genetic enhancement},
keywords = {Public engagement},
keywords = {Public engagement in science and technology},
keywords = {Techno-moral change},
keywords = {Intergenerational techno-moral change},
title = {Anticipatory gaps challenge the public governance of heritable human genome editing},
doi = {10.1136/jme-2023-109801},
author = {Rueda Etxebarria, Jon and Segers, Seppe and Hopster, Jeroen and Kudlek, Karolina and Liedo, Belén and Marchiori, Samuela and Danaher, John},
}