@misc{10481/65510,
year = {2020},
month = {11},
url = {http://hdl.handle.net/10481/65510},
abstract = {Background: Previous studies have confirmed that parenting a child diagnosed with an
intellectual disability (ID) can negatively a ect the parents’ quality of life in several dimensions.
However, fewer have assessed its impact years after the initial diagnosis. The objective of this work
was to carry out an in-depth analysis of the current quality of life and concerns of both mothers and
fathers of adults diagnosed with ID, having as a reference the moment of the diagnosis. Methods:
16 parents of adult children with ID were evaluated using a semi-structured interview format.
A thematic qualitative analysis was carried out by employing ATLAS.ti software. Results: The results
suggested that both the emotional and physical well-being of parents, as well as their interpersonal
relationships, had declined. In addition, the multiple life changes that had occurred over the time
considered in this study, as well as day-to-day worries, had prevented improvements in their quality
of life. Conclusions: Several dimensions of the parents’ quality of life were a ected years after a child
is diagnosed with ID. These included poor physical and psychological health, economic di culties,
lack of social and family support, and lack of time for self-care.},
organization = {FPU predoctoral research grant from the University of Alicante, Spain 	
UAFPU2018-026},
organization = {Program Redes-I 3CE for Research in University Teaching of the Institute of Education Science (Vice-chancellorship of Quality and Educational Innovation) of the University of Alicante 	
4884},
publisher = {Mdpi},
keywords = {Quality life},
keywords = {Well-being},
keywords = {Welfare},
keywords = {Intellectual disability},
title = {Quality of Life and Concerns in Parent Caregivers of Adult Children Diagnosed with Intellectual Disability: A Qualitative Study},
doi = {10.3390/ijerph17228690},
author = {Fernández Ávalos, María Inmaculada and Pérez Marfil, María Nieves and Fernández Alcántara, Manuel},
}