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Please use this identifier to cite or link to this item: http://hdl.handle.net/10481/32998

Title: Study protocol for the development of a European measure of best practice for people with long term mental health problems in institutional care (DEMoBinc)
Authors: Killaspy, Helen
King, Michael
Wright, Christine
White, Sarah
McCrone, Paul
Kallert, Thomas W.
Cervilla Ballesteros, Jorge A.
Raboch, Jiri
Onchev, Georgi
Mezzina, Roberto
Wiersma, Durk
Kiejna, Andrezej
Ploumpidis, Dimitris
Caldas, José Miguel
Issue Date: 2009
Abstract: Background: This study aims to build a measure for assessing and reviewing the living conditions, care and human rights of people with longer term mental health problems in psychiatric and social care institutions. Protection of their human rights is imperative since impaired mental capacity secondary to mental illness can make them vulnerable to abuse and exploitation from others. They also constitute a major resource pressure for mental health services, social services, informal carers and society as a whole. Methods/Design: This study uses an iterative methodology to develop a toolkit to assess internationally agreed domains of care that are considered most important for recovery. These domains are identified by collating results from: i) a systematic review of the literature on institutional care for this service user group; ii) a review of the relevant care standards in each participating country; iii) Delphi exercises in partner countries with mental health professionals, service users, carers and advocates. Common domains and cross-cutting themes are agreed by the principal researchers and an international expert panel. Items are developed to assess these domains and incorporated into the toolkit which is designed to be administered through a face to face interview with the institution's manager. The toolkit is refined in response to inter-rater reliability testing, feedback from interviewers and interviewees regarding its utility, and feedback from key stakeholders in each country about its ability to deliver information that can be used within each country's established systems for quality assessment and review. Cross-validation of the toolkit ratings against service users' quality of life, autonomy and markers of recovery tests whether it can deliver a proxy-measure of the service users' experiences of care and the institution's promotion of their human rights and recovery. The ability of the toolkit to assess the "value for money" delivered by institutions is investigated by comparing toolkit ratings and service costs. Discussion: The study will deliver the first international tool for the assessment of the quality of institutional care for people with longer term mental health problems that is accurate, reliable, informative, useful and easy to use.
Sponsorship: The study is funded by the Sixth Framework of the European Commission and the authors gratefully acknowledge this support.
Publisher: Biomed Central
Description: The authors would also like to acknowledge the contributions of the members of the International Expert Panel throughout the study and thank them for their valuable input: Mr Jerry Tew (social scientist, UK); social care – Mr Tony Ryan (independent consultant on out of area placements, UK), Mr Michael Clark (Care Services Improvement Partnership, UK); rehabilitation psychiatry and psychology – Professor Tom Craig (UK), Dr Frank Holloway (UK), Dr Jaap van Weeghel (Netherlands), Dr Joanna Meder (Poland), Professor Geoff Shepherd (UK); service user perspective – Mr Maurice Arbuthnott (UK), Ms Vanessa Pinfold (Rethink, UK); human rights law – Associate Professor Luis Fernando Barrios-Flores (University of Granada, Spain); mental health law – Professor Peter Bartlett (Nottingham University, UK); disability rights – Ms Liz Sayce (Royal Association for Disability and Rehabilitation, UK); care standards – Dr Geraldine Strathdee (Healthcare Commission, UK).
Keywords: Europe
Mental health
Institucional care
URI: http://hdl.handle.net/10481/32998
ISSN: 1471-244X
Rights : Creative Commons Attribution-NonCommercial-NoDerivs 3.0 License
Citation: Killaspy, H.; et al. Study protocol for the development of a European measure of best practice for people with long term mental health problems in institutional care (DEMoBinc). BMC Psychiatry, 9: 36 (2009). [http://hdl.handle.net/10481/32998]
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